June 2010

‎6/1/2010 Day 95 of Jonesy's Journey-watching "The Blind Side" with Jonesy-(he reports the 1980's rugby version: Jonesy instead of Michael Oher The Green Family instead of the Tuohy Family)

 

 

6/1/2010 Day 95 of Jonesy's Journey-Jonesy found a new workout partner.

 

 

6/3/2010 Day 97 of Jonesy's Journey-an extreme workout with a new therapist today-all about the core- hoping Jonesy can sit up on his own one day.

 

 

‎6/4/2010 Day 98 of Jonesy's Journey-The President of the Christopher & Dana Reeve Foundation, Peter Wilderotter, has called the need for focus and medical help for people with spinal cord injury a "civil rights movement." And so it is. If enough people with SCI make enough noise and demand action, there will be action. Real action will only become a priority when the outcry is too loud to be ignored.

 

 

6/5/2010 Day 99 of Jonesy's Journey- Christopher & Dana Reeve Foundation fact of the day: Paralysis and SCI in the U.S.There are nearly 1 in 50 people living with paralysis in the United States -- approximately 6 million people. That number is nearly 33% higher than previous estimates showed. Almost 1.3 million of those are spinal cord injured.

It means that we all know someone living with paralysis. They live with a condition that affects their family life, their ability to work, and their capacity to enjoy everyday activities.

 

 

‎6/6/2010 Day 100 of Jonesy's Journey- 100 days. Enough said.

 

 

6/7/2010 Day 101 of Jonesy's Journey- officially 4,500+ fans.....5,000 here we come!

 

 

6/8/2010 Day 102 of Jonesy's Journey- Jonesy is extremely bummed out to report he will be ordered to stay in bed for the next three days due to a difficult pressure sore-(his Dr let him out of bed today only because Liliana was here)

 

 

6/9/2010 Day 103 of Jonesy's Journey- From Christopher Reeve's autobiography Still Me.

The doctors had explained my condition, and now I understood how serious it was. This was not a C5-C6, which means you're in a wheelchair but you can use your arms and breathe on your own. C1-C2 is about as bad as it gets. Why not die and save everyone a lot of trouble?Dana came into the room. She stood beside me, and we made eye contact. I mouthed my first lucid words to her: "Maybe we should let me go." Dana started crying. She said, " I am only going to say this once: I will support whatever you want to do, because this is your life, and your decision. But I want you to know that I'll be with you for the long haul, no matter what." Then she added the words that saved my life: "You're still you. And I love you."

 

 

6/10/2010 Day 104 of Jonesy's Journey-Some advice: If you haven't taken care of business do so now: health care proxy, living will, will, guardianship for your children, know your health care policy benefits, if you have a choice go for the best policy available, buy disability insurance, you get the picture...............

 

 

6/10/2010 Day 104 of Jonesy's Journey-Jonesy's bed rest orders are extended through Monday-that pressure sore is as stubborn as he is.

 

 

6/12/2010 Day 106 of Jonesy's Journey-How much does Liliana miss her Daddy? Today she went up to every man in the library and said "Hi Da-da".

 

 

‎6/13/2010 Day 107 of Jonesy's Journey-Jonesy 
got giant hugs from Lil today, they spent a few hours of "bed rest" 
together.

 

 

6/13/2010 Day 107 of Jonesy's Journey-Guess who sent Jonesy a "get well bat"?